Inhibitor Library

INHIBITOR-RELATED BOOKS/BROCHURES

1. World’s First Book on Inhibitors: Managing Your Child’s Inhibitor
   Written by Laureen A. Kelley with Paul Clement, each of whom has a child with hemophilia, this 300+ page book provides everything you need to know about tackling inhibitors, from risk factors for developing inhibitors, to pain management, to product choices, to ITI and everyday living (www.kelleycom.com).
2. Facts About Inhibitors
   Distributed by HANDI and the National Hemophilia Foundation from a grant from Grifols.
3. The Great Inhibinator
   By Chris Perretti Barnes, Illustrations by Michael Graham, produced by BioRx (children’s book, ages 3-15). Reprinted 2011.
4. All About Inhibitors
   By Grifols, a children’s booklet that will help the young inhibitor patient learn about what it means to have an inhibitor and answer questions about it (2008). Also available in Spanish.
5. Inhibitors in Hemophilia A: What Patients and Families Need to Know
   Overview of hemophilia topics and what can be done. Printed and distributed by Grifols (www.grifols.com). Also available in Spanish.
6. Management of Inhibitors in Patients with Hemophilia A: Information for Healthcare Professionals
   By Louis M. Aledort, M.D. Revised December 2008. Also available in Spanish.
7. Changing the Possibilities in Hemophilia
   A series by Novo Nordisk (2010). Making Things A Little Easier brochure: Teens with Inhibitors. Also available in Spanish.

INHIBITOR-RELATED ARTICLES

8. Inhibitors in Hemophilia: A Primer
   By Donna M. DiMichele, MD, Primer vol 7.
   Revised and Reprinted April, 2008.
9. Everything You Always Wanted to Know About Prophylaxis, PORTs, and Immune Tolerance
   PowerPoint presentation by Amy Shapiro, MD and Kathy Bosma, RN. Presented at the NHF Conference, 2003.
10. Factor VII Product Treats Brain Hemorrhages in Inhibitor Patients
    An article by Gina Shaw, published in Hemaware magazine (February, 2011).
11. When to Suspect an Inhibitor
    By Laurie Kelley, Inhibitor Insights in PEN newsletter (February, 2011) and sponsored by Novo Nordisk Inc.
12. Inhibitors in Haemophilia A: The Role of vWF/FVIII Concentrates: A Meeting Report
    By S. Kaveri, A. Gringeri, M. Heisel-Kurth and W. Kreuz in Haemophilia, the official journal of the World Federation of Hemophilia. Reprinted 2009.

ARTICLES FROM HEMOPHILIA.ORG

13. How Do You Know If You Have an Inhibitor?
14. Prognosis for Inhibitor Patients
15. Treatment for Inhibitors
16. Test Results
17. Why Some Patients Develop Inhibitors
18. Who is At Risk for Developing Inhibitors?
19. The Challenge of Inhibitors

VIDEO

20. Inhibitor Bypassing Agents for Hemophilia, Novo Seven RT

PRODUCT INFORMATION

21. Alphanate®: Antihemophilic Factor (Human)
    Developed by Grifols. Product monograph/brochure and package insert available.
22. NovoSeven® (recombinant activated clotting factor VII rFVIIa)
    Developed by Novo Nordisk. Product monograph/brochure and package insert available.
23. FEIBA® (anti-Inhibitor Coagulant Complex)
    Developed by Baxter Healthcare Corporation.
    Product monograph/brochure and package insert available.