American Society of Hematology 1900 M Street, NW, Suite 200 Washington, DC 20036 Phone: (202) 776-0544 Fax: (202) 776-0545 ash@hematology.org http://www.hematology.org American Society of Pediatric Hematology/Oncology Phone: (847) 375-4716 info@aspho.org http://www.aspho.org National Center for Infectious Disease http://www.cdc.gov/ncidod/ National Hemophilia Foundation 116 West 32nd Street, 11th Floor New York, NY 10001 Toll Free: (800) 42-HANDI Phone: (212) 328-3700 Fax: (212) 328-3777 Handihemophilia.org http://www.hemophilia.org National Hemophilia Program / Maternal Child and Health Bureau 5600 Fishers Lane Rockville, Maryland 20857 Phone: (301) 443-1080 http://www.mchb.hrsa.gov National Heart, Lung and Blood Institute 6701 Rockledge Dr., MSC 7950 Bethesda, Maryland 20892-7950 Phone: (301) 592-8573 http://www.nhlbi.nih.gov/health/dci/Diseases/ hemophilia/hemophilia_what.html National Institute of Child and Human Development http://www.nichd.nih.gov National Institute of Health http://www.nih.gov/ National Institute of Allergy and Infectious Disease http://www.niaid.nih.gov/default.htm U.S. Food and Drug Administration http://www.fda.gov Biologics Evaluation & Research http://www.fda.gov/cber U.S. Department of Health and Human Services http://www.os.dhhs.gov

World Federation of Hemophilia 1425 Rene Levesque Blvd. West, Suite 1010 Montreal, Quebec H3G- 1T7Canada Phone: (514) 875-7944 Fax: (514) 875-8916 wfh@wfh.org http://www.wfh.org Blood Journal of the American Society of Hematology http://www.bloodjournal.org Centers for Disease Control & Prevention http://www.cdc.gov The Coalition for Hemophilia B, Inc 225 West 34th, Suite 710 New York, NY 10122 Phone: (212) 213-0547 Fax: (212) 254-6906 Mr. John Taylor, Chairman cfb@boygenius.com http://www.boygenius.com/cfb Clinical Studies for Patients with Hemophilia http://www.centerwatch.com/patient/ studies/cat379.html Disability Resources http://www.disabilityresources.org Hemophilia Federation of America 210 7th St. SE, Suite 200 B Washington DC 20003 Toll Free: (800) 230.9797 Phone: (202) 675.6984 Fax: (202) 675.6983 Kimberly Haugstad, Executive Director khaugstad@hemophiliafed.org http://www.hemophiliafed.org LA Kelley Communications Parent Empowerment Newsletter (PEN) 65 Central Street Georgetown, MA 01833 Toll Free: (800) 249-7977 Phone: (978) 352-6254 Fax: (978) 352-6254 Ms. Laureen A. Kelly, President info@kelleycom.com http://www.kelleycom.com Plasma Protein Therapeutics Association http://www.plasmatherapeutics.org Product Withdrawal Notification http://www.patientnotificationsystem.org