Archive forSeptember, 2008

Our next President and healthcare issues

I received this e-mail today from WebMD- and thought I would share it with you since there are some areas we all need to be clear on before we vote on November 4th.

WebMD Collaborates with Commission for Town Hall Debate Questions
In the Presidential Debate schedule, the Town Hall Debate is the place
where you can ask the presidential candidates questions. For the first
time in U.S. election history, questions posted on the Internet will
be included in this presidential debate.
WebMD is proud to announce that we’ve been selected to collaborate
with the Commission on Presidential Debates to gather your
health care questions for the second of three important
presidential debates.
Don’t miss your opportunity to pose a question to our future
president!
Submit your health care question to the candidates today!
Watch the debate on Oct. 7 at 9 p.m. ET/ 6 p.m. PT. and vote on Nov. 4th
Related WebMD Reading & Resources:
. Where do the candidates stand on health issues?
. See what other WebMD users want to ask the candidates.
. Opinion & Thought Leaders: Voices on Election ‘08
. Basic health insurance information everyone should know.
More Important Health News & Features:
. Candid Candidates: the personal side of the candidates.
. Do you need to plan ahead for retirement health care?
. Are you an ‘undecided voter’? You may not be, actually!
. What Is Medicare Part D?
. Add the Election Widget to Your Desktop or Homepage
. U.S. Health Care Not So Healthy

FEEL FREE TO POST ANY COMMENTS HERE AS WELL.

Carol

Comments

Turning Sixty

Today is a milestone for me.  I turned 60 years old.   When I was diagnosed with PIDD, I NEVER thought I would see this day.   I did NOT believe then, that I could live this long.   I was miserable.  I had no energy.   I felt so crummy, I seldom got out of bed.  I was afraid.   I had never heard of this disease.

What would the future hold for me?   Life was very scary in the years that preceded, and followed my diagnosis.  When I got my diagnosis of PIDD, I was still recovering from Valley Fever (coccidiodiomycosis) which had given me fungal pneumonia for nearly 1 year.  I was also beginning to experience some autoimmune disorders.  At the very same time, my Dr had the nerve to find a suspicious lump in my breast, and sent me for a biopsy.  I was beginning to wonder how much one person can deal with at once. 

I soon learned that you can deal with plenty at once.   My attitude these days……. just throw it at me- I’m ready for anything.

Whenever I was waiting for the results of my breast biopsy, I evolved into another person.   Suddenly I had no fears, I knew who I was, and I was prepared for whatever was coming in my life.   It’s funny how you can make peace whenever you need to.   And that peace has never left me.  That is partially how I deal with PIDD now.  

I was also blessed with an incredibly optimistic attitude.   And, great genes from my Mom.   Of course, the genes my Dad gave me most likely included the PIDD gene.   I won’t get angry with him over that.   He was my hero.   So, I take the bad PIDD gene, and mix it with the optimistic gene, and I get me.

The person who turned 60 today.   I am blessed by a loving, very patient, very caring husband, 2 fantastically talented and handsome sons (Yes, I know, I know) and 3 beautiful and brainy granddaughters (I know, I know).   My Mom is alive and kicking major butt!!  My sister and I are twins who happen to be nearly 3 years apart and love each other very much.  I have wonderful friends who not only care about me, but also make me a better person, so  life is really good - even when it’s not so good.

                                                           

                                            Mom, Dee and Me                                     

                                       My sister, Dee, my Mom and Me

I was very fortunate in that I found a treatment for my PIDD which not only allowed me my independence, but also turned my health around.   I started taking Vivaglobin when it was FDA approved about 2 1/2 years ago- and it has changed my life.   I have the energy, the good health, and the flexibility to have ME back- and not to have to spend most of my time in bed feeling crummy.

This is not to say that I don’t have my share of problems, because I do- 

But I  have learned to deal with them so much better.

Since I have my support group, my life saving medicine, and my positive attitude to help me get through the day with a little luck- I’ll live to say:

I turned 70 today.

But for now, I’m VERY VERY HAPPY to have turned 60 today.

Carol

Comments (6)

More about Probiotics

Credit - Paula Wagler

Probiotics are added to foods such as yogurt. Some yogurts may be more effective than others.

Our digestive tract harbors trillions of microorganisms that for the most part, happily coexist within us.

This party is going on in the colon, and most of the guests are bacteria. Our microorganisms (a.k.a. “microflora” or “microbiota,”) have been described as being as unique to us as a fingerprint, which makes studying the impact of these tiny life forms on humans an enormous undertaking.

Probiotics are live microorganisms in food or supplements that, when eaten, may promote health. However, there are many hurdles to overcome.

How do intestinal microorganisms help us?

Although not fully understood, they are thought to behave in the following ways.

No Trespassing: Private Property! Microorganisms can set up a blockade-type barrier in the digestive tract to help prevent disease-causing germs from entering the bloodstream. Like animals staking their claim, they compete for nutrients and binding sites, preventing other microorganisms from “sticking” to the surfaces of the digestive tract.

Theoretically, the more “good bugs” we have, the more likely they are to win the war for territory.

Some friendly bacteria may break down potential cancer-causing agents. They also can produce substances which kill harmful microbes and create an acid-like environment that some germs are unable to grow in.

They may reduce inflammation and allergens.

Some products of their metabolism can give us energy for brain, muscle, heart and intestinal tissues.

They can make vitamin K and some B vitamins.

What conditions allow the bad bacteria to outnumber the good ones?

When disease-causing germs find a niche, they can modify our normal balance of “friendly bugs,” giving the bad boys an edge and nudging out the good guys (think food poisoning).

Taking antibiotics can wipe out the good, the bad and the ugly bacteria. Taking probiotics can help to reestablish the good bacteria in your digestive tract. But be sure to take calcium-rich dairy foods a couple of hours before or after taking antibiotics, because the calcium can bind with them.

Are all bacteria created equally?

Not all bacteria are considered to be “probiotic.”

These microorganisms are only beneficial to us if they are still around in large quantities when they reach their expiration date. You should select products that are labeled to contain live numbers of microbes “through the end of shelf life.”

Probiotics must be capable of surviving the journey through the acid juices of the stomach and the bile in the small intestines. If they arrive unscathed, they must be able to “go forth and multiply” rather than meeting an untimely death. Many of the starter cultures in yogurt are not considered to be probiotic, because they have expired before they’ve reached the colon.

Because probiotics are regarded as supplements, they do not have to be proven to be effective before they are added to foods. However, disease claims must be backed by scientific data.

Which health conditions do they treat?

Probably the best known use for probiotics is to help people digest the naturally occurring sugar in milk—lactose.

There is also good support for specific strains that treat diarrhea in infants and children, and reduce infants’ risks for developing eczema.

Probiotics also have been reported to improve immune function in older individuals.

Although much of the probiotic research is in the early stages, it is showing some promising results in treating allergies, irritable bowel syndrome, GI inflammation, genitourinary infections, and H. pylori, the microorganism which is often responsible for causing ulcers.

If you think about a shark and your pet guppy, they hardly behave in the same way, even though they are in the same species. The same can be said for various strains of probiotics within the same species, and how they affect different health conditions.

Check with your doctor, pharmacist or dietitian for information about which strains may help with specific health conditions.

Are there any risks involved in taking probiotics?

Two of the most commonly used bacteria are bifidobacterium and lactobacillus, which have a “generally recognized as safe” (GRAS) status in the U.S. They have been safely used for hundreds of years.

People who take probiotics may initially experience gas and bloating, which may or may not subside with continued use.

Parents of premature infants, individuals with weakened immune systems or chronic diseases, and pregnant or nursing mothers should check with their doctor before supplementing their diets with probiotics.

Most of us have heard about germs becoming more resistant to antibiotics, and researchers want to know if this unwelcome characteristic could be passed on from lesser-known probiotics to our own microflora.

Where can I find probiotics?

They are added to many dairy-based foods like yogurt and kefir. You can find them in some types of cereal and granola bars, in juices, and in supplemental forms. Flavorful chewables are making an appearance in stores as well.

Some yogurt manufacturers have incorporated specific strains that will survive as far south as the colon. But these friendly bugs haven’t taken a liking to our accommodations, so they must be ingested for two weeks to be effective. However, a consumer group reports that the scientific evidence for these benefits is weak.

No matter what its bacterial effectiveness, the beauty of yogurt is that it packs a powerful nutritional punch—it’s a great source of calcium, protein, potassium, B vitamins, and sometimes vitamin D, all at a reasonable price. You can’t really lose by eating yogurt—if you try it for two weeks and it doesn’t improve your digestion, you have still benefited by consuming a nutrient-rich food.it

You can find out which supplements pass inspection from Consumer Labs, or check the label for certification from the U.S. Pharmacopeia.

Prebiotics, which are not digested, are much easier to please when it comes to supporting our friendly bacteria. But that’s another story.

Comments

Living with a Chronic Illness by guest author, Leslie B. Mink

Living with a chronic illness such as PIDD is stressful to say the least.   You find yourself coping with physicians, insurance companies, family members, friends, co-workers and the boss as well as the diagnosis, unanswered questions, and very possibly depression.

The best thing to do, in my opinion, is to take a three-pronged approach to the problem:  first - surround yourself with a strong support group comprised of family, friends, acquaintances and healthcare personnel.  Nothing can replace the loving support of family and friends and the caring of acquaintances.

It is important to have a strong healthcare team (with you as the head) to direct your care and to answer questions and attend to your concerns as they arise.

While many marriages are at first tested by the additional stress that a chronic illness brings, many people find that their marriages are strengthened as the partners work together to accommodate the needs of the ill member.

The second prong is the financial aspect and dealing with the insurance companies and healthcare suppliers.   A chronic illness can be very expensive.   Even with good insurance, there are co-pays until you meet your maximum out-of-pocket expense.  This is in addition to the policy costs.  Most healthcare suppliers are reasonable and will work out a payment plan for co-pays due them; some will even reduce what is due when they realize that the patient is in a financial bind.

One thing that is very important:  If you find yourself on Medicare, get secondary insurance coverage.

The third prong is mental health:  chronic illness and depression go hand-in-hand.  Most healthcare professionals agree that depression is chemically based - something in your body has caused the chemical balance in the brain to become off balance.   There has been discussion as to whether it is the disease process or if it is a result of the body trying to heal itself.  Nevertheless, it is there and a chronically ill person needs to treat depression before it gets out of hand.

There are a number of excellent pharmaceuticals on the market today that can reverse depression.   The trick is getting the right drug for you.   Either your primary care physician can prescribe an antidepressant for you, or better yet, consult a psychiatrist whose expertise is medication management to work with you to find a medication that will be effective for you.

Another thing to remember is to take excellent care of your general health, eat properly, get some exercise (stretching, walking, tai chi or whatever is best for you) and get plenty of rest.   This advice doesn’t just apply to persons with PIDDs, but to anyone with a chronic illness.

WISHING YOU GOOD HEALTH.

Guest author:

Leslie B Mink, B.A., Psychology, M.S., Counseling; Diagnosed with CVID- July, 1997,

IDF PEER CONTACT VOLUNTEER, and FEELING GREAT!

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