Archive forNovember, 2007

Timing, Turkey, Turmoil and Tomorrow/ AKA SIBO returns

I posted a few months ago about my trials with small bacterial overgrowth.   It took about 4 months on antibiotics to resolve.   I felt great for quite a while and just assumed I had seen the last of it.

WRONG.    About 6 weeks ago, it returned and I started the antibiotics right away.   Last week-end, I was supposed to go to San Francisco, but the pain in my tummy was like someone sucker-punched me right smack in the middle of my abdomen.   To make matters worse, I had constant ‘morning sickness’, also known as nausea.   I was unable to sleep during the night because for whatever reason, it seems to hurt the very most while reclining.   Cancel San Francisco- schedule Dr appts instead.

I had the same test for SIBO that I had 6 weeks ago and it showed that my levels of bacteria had more than doubled while on the meds.

I had to change to a new antibiotic since I had built up a resistance to the drug of choice from my GI Dr.  Since the test and the fasting were done the day before THANKSGIVING, needless to say- when the big TURKEY day arrived, the last thing on my mind was food.

Great way to diet.  When you are in the midst of a case of SIBO, and then the drug treatment that cures it- there is a level of turmoil that hits the ole GI tract.   I had to abstain from anything that looked tasty, thus the self-inflicted diet. 

Today and many days, I live my life with the song playing in my head from Little Orphan Annie- TOMORROW, TOMORROW- it’s ONLY A DAY AWAY.   Because I always assume tomorrow will be a much better day - and guess what - it usually is.

Why am I telling you this?  Because when it hits you, and at sometime it probably will (remember the description on the IDF web-site that says CVID causes BOTH upper respiratory and GI infections)? I want you to be prepared.   I believe many of us are so focused on preventing the upper respiratory infections, that we dismiss, or forget about other problems we may experience.   If you have a tummy ache that won’t let up- go get it checked out.   You might want to read my posts ‘Some notes I took at Duke’.

Feel free to post a comment and ask me anything you would like to regarding the symptoms and I will try to help.

 THE SUN WILL COME UP TOMORROW

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My life on Vivaglobin

I would like to share with you the difference Vivaglobin has made in my life.  I was diagnosed several years ago with PIDD, and had been taking brand X up until last Fall.   I was feeling better on IgG therapy- but not at all like I began to feel by last October.

I started using Vivaglobin in September of last year, and within the first month, I felt so well that I WANTED to get outside and exercise like I used to.

I began hiking, walking 4 miles per day, biking, doing yoga and now after 1 year, I’m also weight training and have lost most of the weight I gained when first diagnosed.   I don’t want you to think I’m recommending Viva as a weight loss method- but the difference in how I felt opened me up to additional life style changes.   I am much healthier than I was before being diagnosed due to the extra sleep I insist on getting, the well planned and healthy diet, the exercise, and most importantly- my daily dose of Viva.  And, did I mention the attitude adjustment?? Instead of feeling like a patient, I feel normal again- but I just have to deal with this ‘issue’ everyday.

My friends have accused me of either drinking it or rubbing it on my face because of the positive changes they have noticed in my energy levels and demeanor.

I do not do Sub Q the recommended way of once a week with a pump.

I actually push the Viva every day.  My doctor and I decided that this was the best method for me based on my life style- which is very active and hectic.   Everyone will have a different plan of attack with their Viva- but this is mine.

I also want to admit that the difference I saw with the Viva was also attributed to the dose which did change from 5 times per week to daily.   That certainly helped improve my quality of life.

I am free to answer any questions you may have about the use of Sub Q and Vivaglobin.  I will answer them either on this blog, or privately.

Just send me a comment and I will reply at once.

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