BioRx donates to the IDF
Around 4 pm on Thursday, the IDF was presented a check for $25,000 by Phil Rielly, President of BioRx.
It sure put a big smile on my heart watching it.
Archive forJune, 2007
Sign in day for the IDF Conference in St Louis
WOW, today is the the day we all meet in St Louis. There was a welcoming party at 4:30 today. I tried to meet as many patients as I could, but I could not make a dent. There are some terrific PIDD patients here, as well as family members, and healthcare workers. Today is also the set up day for the vendor display- talk about busy. I met a family with 3 PIDD kids, some patients in my age group, patients who have given me hope already.
I can’t wait to hear the session speakers tomorrow. We start bright and early with a talk about treatment options @ 7:00!!!!! Sorry, but I am usually only turning over at that hour.
I’ll get some pics up here tomorrow evening after the Catch the Spirit Celebration. I will say this, I’m beat. This whole being a patient at a conference is very tiring.
Off to bubble bath and beddy bye.
Tomorrow is another day
C
Hi from Minnesota
Hi from Minnesota. I have been living with PIDD (Primary Immune Disease or Primary Immune Deficiency Disease or Immunodeficiency) for many years. I started treatment for CVID in 2004. I currently receive my IgG therapy by self-infusing, or using the Sub Q (subcutaneous) method. I have been feeling so much better since receiving IgG therapy. I feel like I have my life back, and it’s a very active life. I have 2 sons and 5 grandkids. They really help me keep my attitude positive, and my energy charged. I am able to work, play and exercise thanks to my treatment. Yes, I still leave time for resting and relaxation and I sleep 8 or 9 hours every night which is how I recharge the ole battery. I was in sales before I got sick, but since I’ve been diagnosed with PIDD, I have dedicated my life to advocating for this disease in any way that I can. I love working with patients, doctors and healthcare workers. It’s all about education. I sincerely hope that you enjoy reading my blog and feel free to contribute any comments. We are one in this journey.
